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Discussion Starter · #1 ·
My 3 year old neice has been waking up at night screaming for hours that her legs hurt. There were times that the 75 year old grandparents could walk better and go down steps faster than she could. She would keep repeating words over and over and everyone knew that she wasnt right. Her legs would bow out and cramp up and she would just fall over. We found out yesterday that she has Lymes Disease! It blew me away! I've had so many ticks in me and i'm surprised i never got it. I can't believe how severe it was with her. She'll be on antibiotics for a month and she should be 100% after that. No idea how she got it either. She's a girly girl that doesnt play in the woods and they don't have pets to bring them in either.
 

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She'll be in our prayers.
It's a good thing that the doctor actually diagnosed it as lymes. It doesn't always show up in blood tests and often gets mis-diagnosed.
Now that she's getting treated, she'll have a much better chance of full recovery.
 

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Discussion Starter · #12 ·
pappybear said:
She'll be in our prayers.
It's a good thing that the doctor actually diagnosed it as lymes. It doesn't always show up in blood tests and often gets mis-diagnosed.
Now that she's getting treated, she'll have a much better chance of full recovery.
Well first they said she just had the flu, next they said juvenile arthritis, and just a few days ago they said they would check for Lymes, which i guess is a two part test?, and it came back positive with high amounts that they didn't need the second part.

Thanks for the prayers everyone
 

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My son had it when he was 11. We had it diagnosed and he was on the, at the time, prescribed medication. However it did not work and he ended up in CHOPS in Philly. He was there for at least 2 week and they could not figure out what was going on. At one point we were told it was cancer because it was not reacting to the meds. He had to have several spinal taps to relieve the fluid pressure on his brian. Finally they got it and there was a process where a shunt was put into his arm and injjections of a pressureized refrigerated medicine needed to be given to him daily. The shunt went from the bend in his left arm up an artery. To this day he has eye issues caused by bright light and kidney problems. He ia now 28.
 

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Back about 25 years or so I stopped at a bait store near Wilcox and the lady there told me about her young son, just pre teenage, who started complaining about being sick and then after a while and for no apparent reason get to where he couldn’t walk and digressed to the point he was then in a wheel-chair. She said the Doctors couldn’t figure out what was wrong with him.

I suggested that she ask his Doctor to check up on Lyme disease, it symptoms and test for it.

I stopped there a year later and the kid was out running around and doing pretty well. When I asked, she told me that it had indeed been Lyme disease but at the time it was so new to the area the Doctor hadn’t even thought about testing for it until she suggested it.

They moved out of the area then and I have no idea if the kid made a full recovery or not.

But, the point is Lyme can get very serious and even result in death if not caught and properly treated.

Dick Bodenhorn
 

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My three-year-old got Lyme disease back in October, but they caught it very early and she went through some regiments of medications and she is fine now.

We're pretty sure she contracted it while going for a walk along a trail that had some high weeds and grasses at Ole Bull State Park in Southern Potter County.

I hope your 'little one' recovers quickly and fully.
 

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when my son jack was 6 he got lymes but we found the bites and got him right in for treatment. He had a bulls eye bite on each calf, but the treatment and disease is hard to go through for a kid, the antibiotic really messes with their guts and makes ya sick, also the disease messes with the mind, he got very emotional and temperamental.

My son Wyatt also has woke up screaming of leg pain since he could walk. Its a very scary thing as a parent when a young one in crying in pain holding their legs all night. But the doctor chalked it up to growing pains. So now even at 5 if he has a busy day of walking and running he has to take a swig of Tylenol before bed to prevent it.

I'm glad to hear they found it and pray she recovers fully.
Its never easy when it's a child.
 

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There are sooo many symptoms with Lyme - it can surface in many ways. Have a older relative who is in a home becuz of an advanced case from years ago that was not diagnosed or treated for way too long. Good you found it now, and my prayers and best wishes for your daughter and family.
 
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